Kids and wigs: required reading

One of the considerations we had before heading to the wig shop was Porsche’s own self-esteem and sense of self. We always thought ourselves fortunate that she wasn’t sixteen and dealing with teen drama; instead, she was still an overall healthy, happy kid. It wasn’t until she started noticing all the stares her way, around 8, that she felt different.

Even then, we always emphasized that being different (no hair) was akin to being cool/unique. It wasn’t until people started asking about “our son,” or ask what our son’s name was that the flip with Porsche was switched. She had no issue being bald, but heaven forbid she be mistaken for a boy, when she clearly, and loudly, is a girl.

In the photos below, my daughter is smiling because as she told her daddy, “I feel like a girl again.” (Yes, I cried on the phone as I was watching this from home).

Wig shopping

She went wig shopping the day after Christmas because she’d wished for hair. We couldn’t give her that, but went for the next best thing; a wig. It was Roger who went with her for two reasons. The first is I had a toddler at home and we were told this was going to take several hours. Second, the wig shop specializes in leukemia patients, specifically children. Given my own fragile state of mind and the possibility that Porsche had a deeper medical issue, I wasn’t sure I could handle it.

Round one of trying on wigs. Keeping a positive thought, it’s one way to have her envision what a “big girl” will look like.
Wig selection: synthetic first. Too blond (upper left), too dark (upper left) then finding the right color but needs a cut. The back was trimmed to be more age appropriate and bangs

So off they went. As you can see from the smiles, the wig shop was a fun experience for Porsche. First, her head was measured. Second, the colorists started matching what they presumed/thought/ascertained to be her natural color. Because her hair was gone, Porsche pulled out pictures, and then they started pulling out colors. Up next was picking synthetic or natural.

Synthetic

Pros: It holds its shape no matter the circumstances, which is wonderful. Reasonably priced, between 300-$750 dollars.
Con: It can’t be washed, curled, or modified in any major way. The edges will start to fray so you need to trim occasionally. You must keep it on a Styrofoam head piece after washing and condition (with special products)

Natural

Pro: you can wash, style and even color it if you want
Con: you have to keep it on a Styrofoam head piece after washing and condition, but you can use normal hair products. High prices- $3,000-4,000.

After choosing the perfect color, the customer is shown how to put on the nylon cap required to keep the wig in place. Then on goes to the wig. Size is very important for children because their heads are still growing, thus the requirement for the cap, which holds the wig in place when it’s a little loose in the first year or two. The final year, which is about how long a wig, real or synthetic, will last, the cap is no longer required.

The wig is then cut in to the shape desired. In our case, Porsche chose to have a few bangs which could be pulled back or tucked under. She walked out with special shampoo for the wig, a Styrofoam head, and a special brush for the synthetic wig. We also ordered a real wig, which took about 3 months to receive. We learned wigs are produced typically in Europe, and the color requested is matched to order.

Also, another note on natural wigs. They are made from untouched, or “virgin” hair. For this reason, they can be colored if desired, (unlike synthetics which can’t be colored).

Once the hair is cut to her liking, the big (really big) step was to take her out in public. Rog decided to feed her and just hang out at a café for a while.
Pass it on when you are done

As I’d mentioned in the first piece on hair restoration and loss, we found a young girl, aged seven, suffering from her second round of leukemia. She was the recipient of both wigs. Learn more about the issues we encountered when approaching the local Children’s Hospital to understand why we were unable to go that route (they were rejected).

This is the natural wig. You can see how it’s not quite as fluffy and lays more naturally. The hairline is also very well done–so much so you can’t tell it’s a wig unless you are standing right above her and know what to look for.

Tip: If you are in need of a wig, my suggestion is to call the local wig company themselves. Usually, they are the first stop for children/adults in need, and we have found they are very kind and willing to help connect families who are in need and don’t have the funds to purchase a wig.

Hair loss and restoration Part 2

Breakthrough! The metal connection

In the previous blog on hair loss, I described and showed visuals of the mystery illness that had afflicted my daughter, and to a lesser degree myself. Over the course of several years, her hair fell out in chunks, then entirely, as and a team of doctor’s tried to figure out what in the heck was going on.

Recapping where we started, went through and the beginnings of hope

In the spring of the third year, Porsche was nine, and the door of knowledge opened up just a bit.

An acquaintance from church came over to the house and asked about Porsche. She then told me it occurred to her that we might want to have our water and food tested for metals.

How to identify “typical” alopecia and something far worse. Top left: Porsche is still thinking it’s all going to be ok. Top right: She didn’t know I started straightening her hair to cover what was happening underneath. Spots larger than a dime, then huge sections

“Our neighbor had a daughter about thirteen who lost a lot of her hair,” the forty-five-year-old woman told me who lives on a few acres just outside the city water district. “The doctor asked for a water sample of the well, and it turned out it had a lot of heavy metals.”

Huh. We were, in fact, on a community well, but it had been used for over twenty years, and plenty of kids were raised drinking the water. With the exception of the elderly, everyone the community had their hair. Per law, it was regularly tested and passed all the national requirements without exception and always passed.

“Nonetheless,” my friend continued, “you should have it tested again, as well as your daughter for heavy metals.”

Near fatal numbers

Over the next 90 days, we learned that the EPA only tests a fraction of the hundreds of metals in the water (about 350), and that each additional test would be about $1,800 per test. Over 3,000 different metals and permutations exist. We didn’t have that kind of money and wasn’t sure it was going to make a difference.

Seeing huge swaths falling out can be a sign of massive metals in the system

Then Porsche’s own metal numbers came back. She was 70 times the toxic level for heavy metals for an adult, not to mention a nine-year old. According to Dr. Nebalski, she should have had permanent brain damage from the levels of toxicity in her body.

It was a bittersweet moment. At first, we thought: “Yes! We are finally getting somewhere. With a cause we can find a cure.” We were also brought to our knees that she was spared having permanent brain damage.

At the same time, we were no closer to determining the “why” of Porsche’s hair loss started. In order to find a solution, we needed to find the cause. Surely, the well alone couldn’t the culprit, it if it was at all, because s we explained, our family of four had been drinking from the well exclusively for seven years. We were left wondering what we could eat, drink or do that wasn’t going to make her situation worse, or heaven forbid, trigger a reaction in the rest of us.

Doctors united

By this time, we were working with a loose team of physicians, western, holistic and natural, who were all intrigued and somewhat obsessive about figuring this out. They all started working together, from Washington, to Arizona, Italy and beyond. I was relieved to find zero competitiveness among the “types” of doctors, but a sense of comradery born of a desire for results.

As Porsche lost her hair, I lost 30 pounds. It’s not a good look. On the right: we had to adapt Porsche’s habits because while she didn’t mind being bald in public, (she got good at ignoring people), her scalp couldn’t take any sun. She wore it for 3 years when not in the house, or a hat.

They believed it was likely Roger and my younger daughter had been spared because Rog always favored protein drinks, milk or juice over water (still does). My youngest had come off nursing, and was eating mostly organic baby food, and not ingesting bottles of water. Both of them had lucked out for completely different reasons. By comparison, me and Porsche likely had very high levels of metal in our systems because we are both water hogs.

The difference between hair growth and hair loss is night and day. Even, overall growth is evident. That said, hair grows back in the order it was lost.

The doctor’s hypothesized that Porsche’s system was triggered by the incredible doses of concentrated radiation in the ocean water from that original visit to Hawaii. What was already resident in her system went on overload. I was affected as well, but as I was older, constantly eating detoxifying foods such as blueberries while maintaining my supplements, it helped my Ph balance. I suffered hair loss, but not in in big swaths, not chunks. Porsche on the other hand, was in the formative stage; her body simply couldn’t handle it.

Cleaning out the system

If you recall from the last blog, at this time, Porsche already had a regimen for keep her hair follicles open. This included applying topical steroids (liquid) every night. She was still receiving @500 shots in her head every six weeks.

Every day to the scalp to keep the hair follicles open

To this, our holistic physician, Dr. Albert Alyshmerni recommended we (all of us) start taking Zeolite.

“You need to uses Zeolite to remove the metals from the body,” said Dr. Albert (he prefers we use his first name after Dr. instead of his last, so I’m not being disrespectful here).

Zeolite is volcanic ash. When absorbed, through liquid or capsule, it attracts the metals, and then it’s pooped out. It was so strange, because once I learned this information, suddenly others in my circle, who were well aware of my situation, admitted that they’d been taking zeolite for years because they love fish, but wanted to get rid of the mercury and other metals in the food chain. This is a natural, volcanic ash that absorbs heavy metals from the body. It’s been used for decades and comes in liquid and tablet form.

6 months after taking Zeolite and the magnesium, Porsche went from completely bald to this–the top sections first–early July 2015

We have used two different brands with equal success. The only reason for going back in forth is that they aren’t always in stock. Omica was our original, and our current is Theodosia, and it’s only because it seems to be in stock a lot more. I will say it’s a tad more convenient, because the dose is higher so we only take one per day (30 min before a meal) vs 2 a day with the Omica. But again, we notice no difference between the two.

Once or twice a day, 30 min before meals, depending on which brand you get. They both work equally well, though Thoedosia seems to be in stock more often

I will go in to much more detail during the May 30th event on Hair Loss and Restoration at the Athleta Spokane store, but for those of you suffering from any stage of hair loss, I want to get this information out.

Overview of Zeolite

Our doctor likened our Porsche’s body to a tree, her hair being the leaves. The base and insides of the tree had become infected, and the leaves were falling off. However, the tree might be salvageable, but it would take time (months/years) to clean it out, starting with the roots.

“It’s critical you drink at least eight glasses of water,” Dr. Albert emphasized. If we didn’t, the body wouldn’t release the heavy metals, we’d be constipated and this would negate any positive effects.

February 2016, the hair keeps coming in–but instead of being thin and fine, it’s tough and corse. We love it.

Even though we have been using Dr. Albert for 17 years and never been sick (thanks to going the natural route), we were dubious. We read quite a bit about scams of powder and pills, and all sorts of claims, but even the western physicians said: “It certainly can’t hurt.”


April 2016. We are astounded with her hair growth– and also the comments. I started getting looks and questions “Is her father African American?” looking between her skin, her hair then back at me. I took the question as a compliment.

Dr. Albert told us what products to purchase on line (not through him) and to ignore the chatter. Without fail, we (me and Porsche) started taking single zeolite pill every day, 30 minutes before eating. In one month, we didn’t see much difference. Two months in, we both had fine hairs sprouting up around our hairline. At month three however, our new hair resembled newborns, with shoots everywhere. Gradually, Porsche’s bald spots started filling in. The regrowth began in the order of hair-loss—not all over, and not all at once. Literally, we watched the spots of first loss fill in. Now, seven year later, the very last areas to go bald are finally becoming full with hair.

July 2016
The stage of hair re-growth

Phase 1: Interestingly, like a newborn, Porsche experienced something similar to cradle cap. The surface of her scalp (the bald areas) first became white and lightly crusty, requiring a very gentle scraping. We used the soft brushes used on a baby’s head, then switched to a standard black men’s comb. Our physician recommended we be sensitive, and we had to be; if we were rough, the skin would break and bleed. It did, and over time we learned how much pressure to apply.

Phase 2: The next step of re-growth were the fine, spikey shoots. These would grow to several millimeters, then fall out, much like a newborn’s hair. After a few days, the hair would then come in again, but this time, without the cradle cap. Further, the hair itself was strong, thick and never, ever came out. The doctors tested the strength, to be sure this was the real deal, and would tug on the hair. Sure enough, her strands weren’t going anywhere.

Our doctors were extraordinarily pleased, and the shock of the western doctors were high. But when I started asking around to my friends who are nurses, or naturopaths or chiropractitioners, most had heard of, and were using some brand or version of Zeolite! Gah!! As one female nutritionist told me, “I’ve been using it for years because I want to eat fish, and all fish has high metals, no matter what the food companies say,” she contended. Other than metals getting out of her system, I asked if she realized any other benefits. “My hair became thick again,” she said.

Apply to scalp nightly and wash the hair in the morning

While we were thrilled with our results, Dr. Albert asked if we’d been taking Magnesium either liquid of internal. Neither, was our answer. I’d never thought of it. He counseled us to immediately get liquid Magnesium and apply it nightly to Porsche’s hair, which we did. The rate of Porsche’s hair growth markedly increased, and then I asked the Dr. Albert is she could take it internally as well. He said of course. That day, we all started taking a once a day Magnesium supplement.

The added results of the Magnesium were beyond our expectations. About 2 weeks after adding the topical and internal versions, the little fuzzy shoots appeared faster and thicker. As the doctor explained, it was accelerating the healthy hair growth that had been aided by the metal removing Zeolite.

Adult benefits

Rog and I were beneficiaries of this newfound supplement regimen, albeit on a smaller scale. Neither one of us have ever used the magnesium on our heads, but decided to take it internally, along with the zeolite.

Another lesson learned: hair loss returns….

We learned if either one of us failed to take our zeolite while continuing to eat meat, fish or other proteins that are down at the bottom of the food chain, then our hair started to fall out again, and does so rapidly. (It still does). Also, when the water consumption dipped below eight glasses, the hair also started to come out. Case in point, once Porsche got lazy and didn’t take her Zeolite and in two weeks, she showed bald spots. Those same spots take three to six months to fill back in. For myself, I lose hair all around, but it’s most obvious at the tip of my hair, at the crown of my head. Not a great spot to be losing hair.

A recent example was when we went to Cancun. In theory, Atlantic-caught fish is ‘safer’ than Pacific because it’s further from Fukashima. Wrong. It doesn’t matter. After all these years, it’s all pretty much the same, and we learned this first hand because Porsche had remembered her Zeolite, and I’d forgotten. Still, I made the conscious decision to have seafood every day, my typical indulgence tuna tacos or tuna sashimi. Seven days in, when my hair was wet, I’d run my fingers through and they’d be covered with hair. Ten days, doing the same thing while dry resulted it the same, awful experience. By day fourteen, I was convinced I was going bald because of all the hair on the bottom of the shower. My husband talked me down from the follicly-challenged edge, reiterating it would all be ok when I got home.

He was in fact, correct, but it took another week or two before the hair stopped falling out in droves. As I bided my time of waiting, I just repeated to myself that the roots were infected and I needed to clean them out. Today, about 2 months later, my hair not only rebounded, but I have hair growing thick at the top of my forehead.

I couldn’t be happier.

In the next installment, I’m going to go through the side effects and downsides of what I’ve covered so far (not the supplements, but the shots). They were serious and sort of awful, but each one temporary and ultimately rectified.

Here’s what you can start to do immediately, and as we witnessed first-hand; the doctors were right. There were/are nothing but positive effects from the following?

Topical medicine & treatments

  • Morning and night, Porsche has used (and still uses) an over the counter steroid, known as Hydrocortisone 1% (see pic above). This is a topical steroid. All the other commentary about what it helps (itching, psoriasis etc.) are other ailments it apparently helps, but these are not our issues. This has helped the hair follicles remain open as her system became cleaned out. We have her continue to use it because her hair is not fully-grown in.
  • Magnesium oil (see pic above). This is topic, and is applied at night so she can wash it out in the morning. Why night? It turns white and become sticky. It’s not smelly at all, but it’s not the type of thing you want people to see in your hair either. She applies it every night. If she misses for a day or two a month, it doesn’t have an impact. However, if she misses more than that, it’s noticeable.
    **a note on the magnesium. If she brushes her hair/scalp vigorously prior to applying, it stings because her scalp is still sensitive. Watch out on that though—you don’t want the burning, which is akin to getting your hair bleached and the toxic chemicals hitting the scalp- it hurts.

Internal supplements

  • Daily: prenatal vitamin, magnesium, collagen, flaxseed oil and a barley green pills.

Feature picture: myself and Porsche when she was three and I was pregnant with my second daughter.